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Transition to adulthood

3. Supporting my child

3.2. During Life Planning

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 Video: "What is important in life to me"

 

 

Questions of life planning do not always come at a time when parents and young people welcome it. On the one hand, important decisions must be made on possible training, professional development and forms of living. On the other hand, young people are already busy with changes anyway. They are confronted, for example, with a number of interrupted relationships such as finishing school or switch to adult health care. Other changes in the living environment can also reduce the willingness to make plans for the future. To get closer to the wishes of your child "the method of  personal future planning (PZP)" could help, also for small targets, see chapter 5.1.


This chapter is about the life planning during transition to adulthood. We especially intend to talk about work and education, living and health, and therapy:

  • Work / Education

Professionally and educationally, how much choice do PWID really have?

Depending on the severity or type of impairment, the curriculum vitae often appears pre-defined and institutionalized. In some cases, disability-specific offers are increasing, e.g. for people with an autism spectrum disorder. However, if the young person wishes to work in the first labour market (which is an objective of the UN Convention on the Rights of Persons with Disabilities), this requires a lot of perseverance and energy from the parents in implementing an extraordinary individual solution.

See further information in Chapter 5 and the Human Rights module, especially in Chapter 4 "Employment for PWID".

This checklist may also help you to keep track: Checklist for vocational preparation.

  • Living

The time to move out is currently - similar to young adults without mental disabilities - perceived as favourable when changing into working or studying, as changing situations can be combined well with moving out.[14]

The ideal case would be, of course, to wait until the child develops their own impulses for leaving. This often does not seem to be possible, and parents must take active steps.

At the same time, one should be aware that professional arrangements cannot offer "equal" proximity and care. It is acceptable as long as it corresponds to what every young adult experiences and has to learn: to get along in different "worlds" and "frameworks".

However, in order to avoid crises, it is also important, that extraction is not too early so as not to overstretch them, so that young people themselves also want it.

"Desire" to move out, on both sides - how can you make them wake up? It's a tightrope walk: entice, push - with as little pressure as possible! [15]

Sometimes children have to move out much sooner due to the distance from their training or work or due to special needs or if there are constraints, e.g.  Waiting lists of dormitories.  If extraction is "prescribed", however, the child can not perceive it as a self-determined step of detachment.  They are thrown out of the nest.  This is also very difficult emotionally for parents.  "Being active in relocating a child must trigger ambivalent feelings and requires a redefinition of one's role and responsibility."[16]


  • Health / Therapy

People with intellectual and/or multiple disabilities often have additional chronic diseases or even disposition to acute diseases. They have special needs in terms of the scope and quality of their health care.

This is particularly serious with the transition from paediatric and adolescent health care to an adult one. Parents are sometimes shocked by unfamiliar atmosphere and other ways of working.

Some children lose contact with specialised health care when they stop using paediatric services. Effective treatment standards have been established for some paediatric and adolescent medical conditions, but no comparable care structures exist in the adult medical field.

One reason for this is, that life expectancy has increased for people with some complex and rare diseases due to improved medical standards. Adult health care has yet to catch up with this fact.[17]


In some countries (Germany, England) medical centres for adults with disabilities are there to ensure continued care of socio-paediatric patients in adulthood and thus facilitate transition.

Parents often have expert status for special illnesses of their child.

"Since these patients are not expected to become truly independent when they enter adulthood, parents retain their position as responsible persons and must again find reliable contacts in adult health care with sufficient understanding, time and professional expertise to take over the complex care of these patients and to respect the expert role of parents.“

  • Becoming self-employed or supported by others - parents are important partners that actively participate in the process of life planning and accompanying the young adult.

  • To advise young people in their life planning and to develop goals, you can arrange "Personal Future Planning".

You can find out which professional services can support you and your child in Chapter 5.