ELPIDA Course - English

1. Haveman M, Heller T, Lee L, Maaskant M, Shooshtari S, Strydom A. Report on the State of Science on Health Risks and Ageing in People with Intellectual Disabilities. Faculty Rehabilitation Sciences, University of Dortmund: IASSID Special Interest Research Group on Ageing and Intellectual Disabilities; 2009.

2. IASSID. Aging and Intellectual Disabilities International Association for the Scientific Study of Intellectual Disabilities 2002 [cited 2018 13.06]. Available from: https://www.iassidd.org/uploads/legacy/pdf/aging-factsheet.pdf.

3. Tyrer F, McGrother C. Cause-specific mortality and death certificate reporting in adults with moderate to profound intellectual disability. J Intellect Disabilities Research. 2009;53(11):898–904.

4. Eknes J. Utviklingshemming og psykisk helse. Oslo: Universitetsforlaget; 2000.

5. Patrick WHC, Kwok H. Co-morbidity of Psychiatric Disorder and Medical Illness in People With Intellectual Disabilities. Curr Opin Psychiatry, Lippincott Williams & Wilkins. 2007:443-9.

6. Hulbert-Williams L, Hastings RP. Life events as a risk factor for psychological problems in individuals with intellectual disabilities: a critical review. Journal of Intellectual Disability Research. 2008;52:883 - 95.

7. Tronvoll IM. Usynlighetskappen: levekår for funksjonshemmede. In: Romøren TI, editor. Usynlighetskappen. Oslo: Akribe; 2000. p. 105-24.

8. WHO. International classification of functioning, disability and health (ICF). Geneva: World Health Organization; 2001.

9. Haveman MJ. Disease epidemiology and ageing People with Intellectual Disabilities. Journal of Policy and practice in Intellectual Disabilities. 2004:16-23.

10. Strydom A, Lee L, Jokinen N, Shooshtari S, Raykar V, Torr J, et al. Dementia in Older adults with intellectual disabilities. A report on the State of Science on Dementia in older adults with Intellectual Disabilities. IASSID; 2009.

11. Prasher VP. Alzheimer's disease and dementia in Down syndrome and intellectual disabilities. Oxford: Radcliffe publishing; 2005.

12. McGuire BE, Daly P, Smyth F. Chronic pain in people with an intellectual disability: under-recognised and under-treated. Journal of Intellectual Disability Research. 2010;54:240-5.

13. Prasher VP, Janicki MP. Physical Health of Adults with Intellectual Disabilities. Oxford: Blackwell Publishin Ltd; 2002.

14. MENCAP. Death by Indifference. Following up the Treat me right! report. London: MENCAP; 2007 [cited 2018 31.05]. Available from: https://www.mencap.org.uk/sites/default/files/2016-06/DBIreport.pdf.

15. Consensus Norms for Palliative Care of People with Intellectual Disabilities in Europe, (2015).

16. Payne M. Modern Social Work Theory. Hampshire: Macmillan; 1997.

17. Goodwin D. History and Philosophy of Independent Living. Illinois: Impact Online, Impact; 1991.

18. Watchman K, Janicki M, Udell L, Hogan M, A QSB. Consensus Statement of the International Summit on Intellectual Disability and Dementia on Valuing the Perspectives of Persons with Intellectual Disability. Journal of Intellectual Disabilities. 2018.

Videos: 

19. "Atlantoaxial instability". SpineLive. Published 15. Des. 2015: Symptomshttps://www.youtube.com/watch?reload=9&v=MLhcA6Ngrmc

20. "Health Check Resources for Adults with Learning Disability". Southern Health and Social Care Trust. Publised 9. Aug. 2017: https://www.youtube.com/watch?v=4JNTNMROqWc

21. "A guide to your LD health check - for adults with learning disabilities". Kent Community Health NHS Foundation Trust. Publised 9. Apr. 2015:  https://www.youtube.com/watch?v=n56F-qKAwHs

22. "Alzheimer's disease". AboutAlzOrg. Published 26. Okt. 2010:  https://www.youtube.com/watch?time_continue=18&v=7_kO6c2NfmE. Film website: http://aboutalz.org. David Shenk's website: http://davidshenk.com.

23. "Supporting Derek". NineLivesMedia. Publised 20. Jan. 2011. Commissioned by the staff of The University of Edinburgh's Centre for Research into Families and Relationships: https://www.youtube.com/watch?time_continue=1&v=O3ekO4QdKXU

24. "Identifying and Assessing Pain". Center for Developmental Disabilities Evaluation and Research. Publishd 2. Nov. 2017. https://www.youtube.com/watch?v=BnxFrtW6Xmc

25. "Coping with cancer with a learning disability – Amanda’s story". Macmillan Cancer Support. Published 16. Okt. 2015: https://www.youtube.com/watch?time_continue=5&v=OtKdtXPLnPA

26. "Jayne and Jonathan's story": Learning disability healthcare’ made by Mencap. Publised 8.Sep. 2014.:https://www.youtube.com/watch?v=JZA9cClHqWA

27. "HealthWatch". My Life My Choice. 3. Apr. 2014. Champions give their views on how GPs could improve healthcare in Oxfordshire: https://vimeo.com/90853242